June 25th, 2025

Toronto, Canada

Legal

Event Terms and Conditions

These World Vitiligo Day (WVD) Event Terms and Conditions (these ‘Terms’) are an agreement between VR Foundation, Inc. (‘VRF,’ ‘we,’ ‘us,’ or ‘our’) and you. By registering for this event (the “Event”), you confirm that you have read, understand and agree to these Terms. We may modify these Terms at any time by posting a revised version on the Event’s registration webpage or by providing other notice to you. By participating in the Event, you agree to the latest version of these Terms.

1. Registration. To register for the Event, you must complete the Event registration process and pay any registration fee. Event registration may close earlier than posted deadlines, as determined in our sole discretion. Event registration is subject to availability.

2. Payment. If the Event’s registration webpage states that registration fees or other fees are required for the Event, payment must be made via credit card at the time you register for the Event.

3. Cancellation by You. If registration fees or other fees are required for the Event, cancellation instructions and the refund policy will be listed on the Event’s registration webpage.

4. Event Program and Cancellation by Us. The Event program is subject to change and may include additional activities, including social or sporting events, outside of the primary venue(s). VRF may cancel the Event at any time and may deny, limit or cancel a registration for the Event (including a confirmed registration) at any time, for any or no reason. VRF is not responsible for any damages, direct or indirect, resulting from such cancellation. If VRF cancels the Event or your registration, so long as you are in compliance with these Terms and any refund policy listed on the Event’s registration webpage, VRF will issue you a full refund of your Event registration fee in accordance with that refund policy. In the event of any cancellation by you or VRF, except for Sections 1, 5, and 8, these Terms will continue in full force and effect.

5. Code of Conduct and Security. You agree to (a) behave in such a way as to create a safe, supportive learning environment while at the Event and any related events, (b) not engage in disruptive speech or behavior or otherwise interfere with the Event or other individuals’ participation in the Event, (c) comply with all applicable laws, and (d) not engage in any form of harassing, offensive, discriminatory or threatening speech or behavior, including relating to race, gender, sexual orientation, religion or disability. If VRF believes that you are not complying or will not comply with these rules, then VRF may deny you entry or require you to leave the Event, including any related events and event venue(s) (unless otherwise prohibited by law) and you will not be eligible to receive a refund of any fees paid to VRF related to the Event. If you witness such behavior of other participants, please promptly contact an VRF staff member so direct action can be taken. Your safety and security is important. You understand that you and your property may be subject to a reasonable search upon entry to the Event. Your refusal to participate in these security measures may result in your denial of entry without refund of registration fees or other fees. We also reserve the right to ask you to leave the Event (without refund of any of your fees) if your behavior causes us concern for the safety or security of Event attendees.

6. Your Information. Please note that all information, including personal information, you provide to us, including your contact details, your photograph, and your credit card information, are subject to the VRF Privacy Policy. You consent to our collection, use, and disclosure of all information you provide when registering for the Event in accordance with the VRF Privacy Policy. Your contact information will be used to send details and announcements to you related to the Event and other related VRF marketing communications. We might also provide your contact information to third-party Event sponsors if (a) you elect to attend any sessions or other activities at the Event hosted by Event sponsors (in which case we would provide your contact information to only the Event sponsor(s) acting as host) or (b) you opt in during registration or otherwise to receive communications from our third-party Event sponsors. Any photograph of your face that you choose to provide to us and information derived from it might be used to complete your registration at the Event by determining whether the image of your face in the photograph is visually similar to an image of your face as it appears at the Event. If we use such information for this purpose, then it will be retained for no longer than necessary for us to accomplish this purpose and to comply with any other applicable legal obligations.

7. License to Use Materials. You grant us, our affiliates, and our independent contractors the right to record, film, photograph, and capture your voice and likeness in any media at the Event (the “Items”). By attending the Event, you grant to VRF and its affiliates, agents, employees, and assigns an irrevocable, nonexclusive, perpetual, worldwide, royalty-free right and license to use, reproduce, modify, and distribute, for any purpose relating to our business, all or any part of the Items and other materials submitted or presented by you (in electronic copy, hard copy, or otherwise) in connection with the Event (collectively, the “Materials”). We may edit the Materials, use them alone or together with other information including your name and biographical information, and allow others to use and disseminate them. You waive any moral rights you may have in the Materials (unless prohibited by law).

8. Assumption of Risk. You acknowledge and agree that your attendance and participation in the Event is voluntary. You agree to assume the risks associated with attending and participating in the Event to the fullest extent permitted under applicable law. If you choose to consume alcohol at any Event, you represent that you are over the applicable legal drinking age.

9. Release of Claims. You (for yourself, your heirs, personal representatives, assigns, and anyone else who might make a claim on your behalf) hereby release VRF and its affiliates, and their respective directors, officers, employees, contractors, representatives, agents, successors and assigns, from any and all claims, demands, causes of action, suits, damages, losses, debts, liabilities, costs and expenses (including without limitation reasonable attorneys’ fees and costs) that you may have now or in the future associated in any way with the Event or the Items.

10. Taxes. Each party will be responsible for paying all applicable taxes and other governmental fees, charges, penalties, interest, and additions to such taxes that are imposed on that party upon or with respect to the transactions and payments under these Terms. All fees payable by you are exclusive of applicable taxes and duties, including, without limitation, VAT, excise taxes, sales and transaction taxes, and gross receipts taxes (“Indirect Taxes”). VRF may collect Indirect Taxes from you, unless you furnish VRF with a properly completed exemption certificate or a direct payment permit certificate for which VRF may claim an available exemption from Indirect Tax.

11. Indemnification. You will defend, indemnify and hold harmless VRF and its affiliates, and their respective directors, officers, employees, contractors, representatives, agents, successors and assigns, from and against any loss, damage, costs and expenses (including without limitation reasonable attorneys’ fees and costs), and any other liability related to or arising out of your attendance, participation or conduct at the Event.

12. Limitation of Liability. IN NO EVENT WILL (a) VRF BE LIABLE FOR ANY LOSS OF DATA, LOSS OF PROFITS, LOSS OF OPPORTUNITY, COST OF COVER OR FOR ANY SPECIAL, INCIDENTAL, CONSEQUENTIAL, INDIRECT, PUNITIVE, OR EXEMPLARY DAMAGES OR (b) THE AGGREGATE LIABILITY OF VRF FOR ALL OTHER DAMAGES IN CONNECTION WITH THE EVENT EXCEED $100.

13. Sanctions. You represent and warrant that you and your financial institution(s) used to fund any fees required for the Event are not subject to sanctions or otherwise designated on any list of prohibited or restricted parties or owned or controlled by such a party, including but not limited to the lists maintained by the United Nations Security Council, the US Government (e.g., the US Department of Treasury’s Specially Designated Nationals list and Foreign Sanctions Evaders list and the US Department of Commerce’s Entity List), the European Union or its member states, or other applicable government authority.

14. Assignment. Neither party may assign or otherwise transfer these Terms or any of its rights and obligations under these Terms without the prior written approval of the other party; except that either party may assign or otherwise transfer these Terms without the consent of the other party (a) in connection with a merger, acquisition or sale of all or substantially all of its assets, or (b) to any affiliate or as part of a corporate reorganization. Effective upon such assignment or transfer, subject to the assignee/transferee’s consent, the assignee/transferee is deemed substituted for the assignor/transferor as a party to these Terms and the assignor/transferor is fully released from all of its obligations and duties to perform under these Terms. Subject to the foregoing, these Terms will be binding upon, and inure to the benefit of the parties and their respective permitted successors and assigns.

15. Choice of Law and Venue. These Terms will be deemed made in and will be construed in accordance with and governed by the laws of the State of Delaware. For any dispute arising out of these Terms, you irrevocably submit to venue and exclusive personal jurisdiction in the federal and state courts in Delaware, USA and waive all objections to jurisdiction and venue of such courts.

Last updated: January 10, 2020

We firmly believe in the value and importance of an environment where all event participants feel welcome and safe. This Code of Conduct explains what type of behavior we expect from event participants. The terms of this Code of Conduct are non-negotiable. We will not tolerate behavior that runs counter to this Code of Conduct.

 

Behavior

1. You will behave in a way as to create a safe and supportive environment for all event participants.

2. You will not engage in disruptive speech or behavior or otherwise interfere with the event or other individuals’ participation in the event.

3. You will not engage in any form of harassing, offensive, discriminatory, or threatening speech or behavior, including (but not limited to) relating to race, gender, gender identity and expression, national origin, religion, disability, marital status, age, sexual orientation, military or veteran status, or other protected category.

4. You will comply with the instructions of event and venue staff.

5. You will comply with all applicable laws.

 

Scope

We expect all event participants (including VR Foundation employees, attendees, vendors, sponsors, speakers, volunteers, and guests) to uphold the principles of this Code of Conduct. This Code of Conduct covers the main event and all related events (social or otherwise).

 

Consequences

If we believe that you are not complying with this Code of Conduct, we may deny you entry or require you to leave all event venue(s). All determinations are at our sole discretion. We will involve local law enforcement if we deem appropriate.

If we deny you entry or require you leave, you will not be eligible to receive a refund of any fees paid to us or local event organizers related to the event or related events. Breaches of this Code of Conduct may result in disqualification from participating in future events.

Contacts

If you witness or are subjected to inappropriate behavior, or have concerns related to this Code of Conduct, please promptly contact VR Foundation at 1-855-966-3555 or info@vrfoundation.org.

 

Last updated: January 10, 2020

Terms of Use for worldvitiligoday.ca

YOUR USE OF THIS SITE, YOUR REGISTRATION ON THIS SITE or any other Vitiligo Research Foundation (VRF) Web properties or third-party sites managed by VRF, OR YOUR PROVISION TO US OF ANY CONTENT OR PERSONAL INFORMATION CONSTITUTES YOUR AGREEMENT TO THESE TERMS, INCLUDING BUT NOT LIMITED TO THE PRIVACY AND INFORMATION SECURITY POLICY (THE ‘PRIVACY POLICY’) all as amended from time to time. DO NOT USE THE SITE OR PROVIDE CONTENT OR PERSONAL INFORMATION IF YOU DO NOT AGREE TO THE TERMS OR IF YOUR JURISDICTION WILL NOT HONOR THEM.

Table of Contents

1. Restrictions on Use of Content

2. Registration and Creating Profiles etc.; Attribution of Electronic Acts to You

3. User Generated Content & Site Activities

A. User Generated Content –Your Responsibility and License to Others

B. Site Activities

C. No Commissions

4. Privacy and Information Security, INCLUDING CONSENT TO INTERNATIONAL DATA TRANSFERS & DISCLOSURE

5. Infringement of Our Rights or the Rights of Others; Your Warranty

6. Feedback; Your License to Us

7. Indemnification

8. NO WARRANTIES, CONDITIONS OR OTHER DUTIES

9. NO INCIDENTAL, CONSEQUENTIAL OR CERTAIN OTHER DAMAGES

10. EXCLUSIVE REMEDY; DAMAGE LIMITATION

11. Linked Sites

12. Amendments

13. GOVERNING LAW AND EXCLUSIVE JURISDICTION

14. Legal & Other Notices & Disclosures

15. Termination or Cancellation; No Continuing Rights

16. Entire Agreement; Miscellaneous

17.  Electronic Transactions

18. Additional or Required Notices.

worldvitiligoday.ca is a web site associated with the Vitiligo Research Foundation (VRF), a registered 501(c)3 non-profit organization existing under the laws of the State of Delaware, U.S.A. (‘VRF,’ ‘we,’ ‘us’ etc.). These Terms are an agreement between the VRF and you and govern your use of the Site and all information on or submitted through it.

Some users of this Site are employees or other agents of entities, so references to ‘you’ means both: (1) any entity or individual that is your employer or for whom you act as agent, and (2) the ‘user’ individually unless otherwise stated on the Site or in these Terms. Persons under 18 years of age are not authorized to use the Site.

1. Restrictions on Use of Content

This Site is designed for informational purposes only and NOT for the purpose of rendering medical advice. It is a tool to help you get the best from your interaction with your physician, but all individual medical cases require the consultation of a fully qualified physician to make sound medical decisions. The information represented on this website is not intended to replace the advice of your doctor. It is important that your doctor be consulted before undertaking or altering anything in your treatment. VRF does not specifically endorse any medications, products, equipment or treatments for vitiligo.

The Site contains a variety of information, including (without limitation) information, data, text, software, music, sound, photographs, graphics, video, messages or other materials, that you upload, post or otherwise provide in connection with the Site (‘Content’). Much of the Content on the Site is not available for downloading, such as our copyrighted works that we do not distribute or works of others that we are not permitted to distribute. However, we also may have Content that if so designated may be downloaded by you pursuant to these Terms (‘Available Content’).

YOU MAY REVIEW, DOWNLOAD, COPY, DISTRIBUTE AND USE THE AVAILABLE CONTENT SOLELY FOR THE PURPOSE OF FURTHERING YOUR MISSION IN THE ORDINARY COURSE OF YOUR GOVERNMENTAL OR CHARITABLE PURPOSE AND ATTENDANT OPERATIONS. YOU MAY NOT SELL THE AVAILABLE CONTENT OR OTHERWISE DISTRIBUTE IT FOR A FEE. YOU WILL NOT USE OR DISCLOSE IT OR THE SITE TO ANY THIRD PARTIES EXCEPT AS EXPRESSLY PERMITTED BY THESE TERMS.

This Site is controlled by us from our offices within the United States of America. If you choose to access this Site from locations outside the U.S. you do so at your own risk and you are responsible for compliance with any local laws. You may not use or export anything (including information) from the Site in violation of U.S. export laws, regulations or the Terms.

2. Registration and Creating Profiles etc.; Attribution of Electronic Acts to You

For some areas of the Site, you may have to complete a registration process or create a profile for use in applying for something (e.g., a World Vitiligo Map profile or a grant). Completion of the process will usually create an account with a user name and password or other identifier which you agree to guard as confidential information—if you are careless with it, others may be able to access the information. You agree to provide accurate, current and complete information at all times. You also agree that you will review, maintain, correct, and update such information in a timely manner to maintain its accuracy and completeness by using the means allowed for the relevant information or, when appropriate, by contacting us. If you provide (or the VRF has reasonable grounds to believe that you provided) any information that is inaccurate, not current, or incomplete, the VRF may suspend or terminate your access, application, grant or participation in a program, in addition to exercising all rights and remedies allowed by law.

You agree that all uses of the identifier established for you during a registration or similar process will be attributed to and legally bind you and may be relied upon by us and our agents, affiliates, and other third parties with whom we work in order to provide the Site, Content, services or pursue our mission (including but not limited to our and their respective affiliates, officers, employees and agents) (collectively ‘Third Parties’), as being a use made by you, even if someone else used your identifier.

3. User Generated Content and Site Activities

A. User Generated Content — Your Responsibility and License to Others. Sometimes you may wish to provide Content, such as by uploading a photo or information, or submitting comments in a feedback form or forum. When you provide Content, you:

• represent and warrant that the Content is (a) wholly your original work, or (b) that you have all necessary right, title, interest and licenses to upload it and make it available to the VRF and other users for download, distribution and use under these Terms without (i) violation (by you, us, Third Parties, users or anyone else) of any applicable license, restriction or law, or (ii) a potentially adverse consequence to us, Third Parties, users or anyone else that you have not conspicuously disclosed in the Content. As used here, ‘adverse consequence,’ means a restriction governing the Content which could be triggered if we or others exercise a right under the license you grant below and which imposes an obligation, liability or impairment of rights on us or others that was not conspicuously disclosed by you before exercise of a right. To disclose an adverse action, you agree to conspicuously place on or in the Content notice that adverse actions can result and that you may be contacted at the email address and telephone number in the notice to obtain your full disclosure of applicable licenses and restrictions applicable to the Content;

• grant the VRF, its affiliates, Third Parties sub-licensees and successors and assigns, and each Site user who downloads the Content under these Terms, a perpetual, nonexclusive, worldwide, royalty-free, fully paid up, irrevocable license to (i) use, copy, distribute, modify and create derivative works from the Content; (ii) publicly perform or display, license and distribute copies of the Content, modified Content and derivative works of the Content; and (iii) sublicense to third parties the foregoing rights, including the right to sublicense to further third parties, as necessary or advisable (as determine by the VRF or other licensed person in its sole discretion) to allow the VRF or other licensed person to fulfill its charitable or governmental mission, to further its related operations, and to create, advertise, operate and manage the Site.

In addition to the rights above, you acknowledge and agree that we may keep Content indefinitely and disclose it for any purpose, including but not limited to: (a) comply with legal process; (b) enforce these Terms; (c) respond to claims that any Content violates the rights of third-parties; or (d) without undertaking a duty to do so, protect the rights, property, or personal safety of the VRF, its users and the public.

You agree not to upload, post or otherwise transmit through the Site any Content or any other materials whatsoever that are or could appear to:

(i) be defamatory, obscene, invasive to another person’s privacy or protected data, or tortious; (ii) be infringing upon anyone’s intellectual property rights, including any patent, trademark, trade secret, copyright, or right of publicity; (iii) contain any software viruses or any other harmful computer code, files, or programs, including any designed to interrupt, destroy, or limit the functionality of any computer software or hardware or telecommunications equipment; and (iv) in violation of any applicable license, law or contractual or fiduciary duty or provision (including by exercise of the rights you grant to the VRF above).

The VRF anticipates that substantial Content or even assistance will be made available to you and others through the Site or otherwise. Content may be outdated or contain typographical errors, inaccuracies, omissions, or problematic or defective functionality, and assistance (such as VRF help with a report you are obligated to make) will need your review.

YOU AGREE NOT TO RELY ON CONTENT OR ASSISTANCE AND TO DETERMINE ALL RELEVANT FACTORS ON YOUR OWN, INCLUDING (WITHOUT LIMITATION) ACCURACY, FUNCTIONALITY, QUALITY, RELIABILITY AND OTHER RELEVANT FACTORS.

We reserve the right to monitor and exercise all other rights of ours, and also to modify or remove any Content or assistance at any time, but do not undertake any duty to do so.

Any opinions, advice, statements, assistance, services, offers, or information expressed or made available by third parties, including users, are those of the respective author(s) or distributor(s) and not of the VRF.

B. Site Activities. The Site is provided as is and when available, and we may change all Content, functionality and services in our discretion at any time. We may also do this for particular activities even if you have started to participate. For example, we can change a grant description at any time even if you have already applied, and not grants may be posted at all or on the Site – we use various methods for pursuing our mission and they are not limited to the Site. Also, we or Third Parties might make a mistake and we reserve the right to correct anything, including but not limited to Content or assistance on the Site. For example, we may correct, change, withdraw or do anything else with a grant description even if you have already taken action based on it.

C. No Commissions. We do not want to deal with persons desiring to be paid for something unless we intentionally enter into an express contract to do so. This means, for example, that we do not pay commissions or other sums to anyone who helps arrange a job, grant or anything else unless we have expressly contracted to do so in writing prior to any such arrangement. For example, if you submit an application for someone else without entering into such a contract with us, we will not pay you (or anyone else) a commission or other amount even if we accept the application, hire the person or make the grant etc. We may also use, delete or ignore any information you provided without paying you anything and without undertaking any duties to you or anyone else. If you do not want that result then do not submit any information without entering into a written contract with us first.

4. Privacy and Information Security Policy, INCLUDING CONSENT TO INTERNATIONAL DATA TRANSFERS & DISCLOSURE (“Privacy Policy”). Our Privacy Policy is part of these Terms and is incorporated herein. DO NOT PROVIDE, OR ALLOW OTHERS TO PROVIDE, PERSONAL INFORMATION ABOUT ANYONE UNLESS YOU, ON YOUR OWN BEHALF AND ON BEHALF OF ANYONE WHOSE INFORMATION YOU PROVIDE: (A) HAVE REVIEWED AND AGREE WITH THE PRIVACY POLICY, AND (B) ARE AUTHORIZED TO, AND DO, CONSENT TO HAVE ALL DATA USED AND TRANSFERRED INTERNATIONALLY.

5. Infringement of Our Rights or the Rights of Others; Your Warranty.

Our Site, including the Content, is protected by intellectual property laws and you agree to respect them. See the ‘Additional or Required Notices’ section of these Terms for more information about our trademarks and copyrights. All rights not expressly granted to you are reserved. As for intellectual property rights of others, anyone who believes that their work has been infringed, may provide a notice to our copyright agent—see the Additional or Required Notices section of thee Terms. It is our policy to terminate in appropriate circumstances any (if any) account or right of access for repeated infringement, and we also reserve the right to terminate for even one infringement.

6. Feedback; Your License to Us.

We hope that you will provide your Feedback (as defined below) so that we may better support, improve and pursue our charitable mission. However, you agree that you will not supply Feedback that infringes or violates the rights of others, and you hereby grant a License to the VRF (as defined below) in your Feedback. You agree that we have no obligation to pay you or anyone else for Feedback or for the License to the VRF. ‘Feedback’ means all remarks, data, suggestions, methods, surveys, reports, processes and ideas (including patentable ideas) and other Content that you provide by using the Site or provide about it, Content or any aspect of our mission or operations, whether provided to us or persons working with us or the Feedback, and whether provided through the Site or media such as a chat room, survey, report, grant, software tool, bulletin board or otherwise.

As used above, ‘License to the VRF’ means a non-exclusive, perpetual, irrevocable, royalty-free, transferable, sub-licensable, worldwide license to the VRF to exercise all now or later existing intellectual property rights or other rights of yours or others in the Feedback, for purposes of supporting the VRF’s charitable purposes (as determined by us in our discretion from time to time) in full or in part and in all possible media (now known or later developed). The foregoing rights include (but are not limited to), the right to display, perform, read (on air or otherwise), and publish in public or private sites, newspapers or other media, brochures, reports and so on, all or part of the Feedback and any other information that you provide through or relating to our Site or the Content. The License to the VRF is in addition to any (if any) that you may be required to provide under any separate agreement between us and you (including grants or other agreements).

7. Indemnification.

You agree to indemnify, defend and hold harmless the VRF and Third Parties, from and against any and all losses, damage, liability and costs of every nature incurred by any of them in connection with any claim, damage or loss related to or arising out of: the Content, use of the Site or related sites, any assistance or services provided by us or Third Parties, any alleged unauthorized use of the Site, or any breach or alleged breach by you of these Terms. You agree to cooperate fully in the defense of any of the foregoing. We reserve the right, at our own expense, to control exclusively the defense of any matter otherwise subject to indemnification by you and you will not settle any matter without our consent in a non-electronic record. Your obligation to indemnify, defend and hold harmless shall be limited to the extent that you are afforded sovereign immunity under applicable federal, state or local laws. In such cases where your obligation to indemnify may be limited due to the requirements of federal, state or local laws, you shall be responsible for the ordinary negligent acts and omissions of your agents and employees causing harm to persons not a party to this agreement.

8. NO WARRANTIES, CONDITIONS OR OTHER DUTIES.

THE SITE AND ALL CONTENT (regardless of who generates it), SITE FUNCTIONALITY, ASSISTANCE AND SERVICES PROVIDED BY SITE, THE VRF OR THIRD PARTIES (collectively, ‘COMPLETE SITE’) ARE SUBJECT TO CHANGE AND PROVIDED BY US OR THIRD PARTIES ‘AS IS’ WITHOUT ANY WARRANTY OR CONDITION, AND WITHOUT THE UNDERTAKING OF ANY DUTY, OF ANY KIND, EITHER EXPRESSED OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, ANY (IF ANY) WARRANTIES OR CONDITIONS OF MERCHANTABILITY AND FITNESS FOR A PARTICULAR PURPOSE, AND ANY DUTY (IF ANY) OF WORKMANLIKE EFFORT OR LACK OF NEGLIGENCE. THE COMPLETE SITE IS PROVIDED: (1) WITH ALL FAULTS AND THE ENTIRE RISK AS TO SATISFACTORY QUALITY, PERFORMANCE, ACCURACY AND EFFORT IS WITH YOU; AND (2) WITHOUT ANY ASSURANCE, OR WARRANTY, CONDITION OR DUTY OF OR REGARDING: FUNCTIONALITY; PRIVACY; SECURITY; ACCURACY; AVAILABILITY; LACK OF: NEGLIGENCE, INTERRUPTION, VIRUSES OR OF OTHER HARMFUL CODE, COMPONENTS OR TRANSMISSIONS; OR THE NATURE OR CONSEQUENCES OF AVAILABLE CONTENT SUCH AS (WITHOUT LIMITATION) WHETHER SOFTWARE OR OTHER CONTENT IS SUBJECT TO ANY PARTICULAR LICENSE, OR WHETHER IT IS SUBJECT TO ANY RESTRICTIONS OR CONSEQUENCES THAT MIGHT BE TRIGGERED BY ANY EXERCISE OF A RIGHT GRANTED UNDER THESE TERMS. ALSO, THERE IS NO WARRANTY BY US OR THIRD PARTIES OF TITLE OR AGAINST INFRINGEMENT OR INTERFERENCE WITH ENJOYMENT OF ANY ASPECT OF THE COMPLETE SITE. YOU AGREE THAT YOU WILL OBTAIN (INCLUDING THROUGH DOWNLOAD) ANY CONTENT ENTIRELY AT YOUR OWN RISK, AND YOU WILL BE SOLELY RESPONSIBLE FOR ANY RESULTING INFRINGEMENT, BREACH OF CONTRACT, CONSEQUENCE OR DAMAGE, INCLUDING (WITHOUT LIMITATION) TO YOUR COMPUTER SYSTEM OR LOSS OF DATA.

9. NO INCIDENTAL, CONSEQUENTIAL OR CERTAIN OTHER DAMAGES.

TO THE FULL EXTENT ALLOWED BY LAW, YOU AGREE THAT NEITHER THE VRF NOR ANY OF THE THIRD PARTIES, WILL BE LIABLE TO YOU OR ANYONE ELSE FOR ANY SPECIAL, CONSEQUENTIAL, INCIDENTAL OR PUNITIVE DAMAGES, DAMAGES FOR LOST PROFITS, FOR LOSS OF PRIVACY OR SECURITY, FOR LOSS OF REPUTATION, FOR FAILURE TO MEET ANY DUTY (INCLUDING WITHOUT LIMITATION ANY DUTY OF GOOD FAITH OR LACK OF NEGLIGENCE OR OF WORKMANLIKE EFFORT), OR FOR ANY OTHER SIMILAR DAMAGES WHATSOEVER THAT ARISE OUT OF OR ARE RELATED TO ANY ASPECT OF THE COMPLETE SITE OR TO ANY BREACH OF THESE TERMS (INCLUDING WITHOUT LIMITATION, THE PRIVACY POLICY), EVEN IF WE OR A THIRD PARTY HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES AND EVEN IN THE EVENT OF FAULT, TORT (INCLUDING NEGLIGENCE) OR STRICT OR PRODUCTS LIABILITY OR MISREPRESENTATION.

10. EXCLUSIVE REMEDY; DAMAGE LIMITATION.

YOU AGREE THAT YOUR EXCLUSIVE REMEDY FOR ANY BREACH OF THESE TERMS (INCLUDING WITHOUT LIMITATION, THE PRIVACY POLICY) AND FOR ANY AGGREGATE DAMAGES DUE YOU (OR OTHERS RELATED TO YOU) BY THE VRF OR ANY OF THE THIRD PARTIES FOR ANY REASON RELATING TO ANY PART OF THE COMPLETE SITE, WILL BE AT OUR OPTION: (A) SUBSTITUTION, CORRECTION OR REPLACEMENT OF ALL OR PART OF THE CONTENT OR SERVICE CAUSING YOUR DAMAGE (IF ANY); OR (B) THE AMOUNT OF YOUR DAMAGES THAT ARE NOT EXCLUDED IN THE PRECEDING SECTION AND WHICH YOU ACTUALLY INCUR IN REASONABLE RELIANCE, WHICH AMOUNT WILL BE THE LESSER OF THE AMOUNT YOU ACTUALLY PAID US FOR THE ITEM CAUSING THE DAMAGE (IF ANY) OR THE AMOUNT OF SAID DAMAGES SO INCURRED. The damage exclusions and limitations in these Terms are independent and will apply even if any remedy fails of its essential purpose.

11. Linked Sites.

Our Links to Other Sites: Our Site may contain links to Web sites of third parties. We provide these links as a convenience, but do not endorse the linked site or anything on it. While their information, products, services and information may be helpful to you, they are independent entities and we do not control or endorse them. You agree that any visits to linked sites are at your own risk and governed by their privacy policies (if any).

Your Links to Our Site: You are not permitted to link or shortcut to our Site from your Web site, blog or similar application, without obtaining prior written permission from us.

12. Amendments. You agree that from time to time we may alter (including adding or eliminating all or parts of provisions) these Terms, including but not limited to the Privacy Policy (‘Amendments’). Amended versions of these Terms will take effect on the date specified for the amended version (‘Effective Date’) and will apply to all information that was collected before or after the Effective Date, including information in databases. You have no continuing right to use the Site – it is like a store and each time you visit you will be subject to the version of the Terms in effect on your visit. Like terms on the door to a store, those terms will change from time to time and the changes will be effective when they appear in a replacement version of these Terms as posted by us on the Site. No other Amendments will be valid unless they are in a paper writing signed by us and by you.

Each time you return to the Site, you are responsible for checking the effective date of the then posted version of these Terms—if it is later than the date of the version last reviewed, the Terms have been changed and the new version should be reviewed before using the Site. USE OF THE SITE AFTER THE EFFECTIVE DATE WILL CONSTITUTE YOUR CONSENT TO THE AMENDMENTS, SO IF YOU DO NOT WANT TO BE BOUND BY AN AMENDED VERSION, DO NOT USE THE SITE AND CEASE ALL USE OF THE CONTENT OR SERVICES.

13. GOVERNING LAW AND EXCLUSIVE JURISDICTION. These Terms and your use of the Site are governed by the laws of the State of Delaware, U.S.A., without regard to its choice of law provisions, except where you are required by published governmental law, ordinance, regulation, directive, order, or the like (collectively, ‘Mandate’) to contract for application of the law of your local jurisdiction. You hereby consent to exclusive jurisdiction of a state or federal court of general jurisdiction sitting in Wilmington, Delaware, U.S.A. except to the extent you are prohibited from doing so by a Mandate.

14. Legal and Other Notices or Disclosures.

  • Notice to You: You agree that we may give all notices we are required to give you by posting notice on the Site or, if we have your email address, by sending notice by email at our discretion, including (without limitation), disclosures that we are required to give you, legal notices, notice of subpoenas or other legal process (if any), and all other communications. When we communicate by email, we may use any email address you provide when communicating with us or that we otherwise have in our records, so only supply to us an email address at which you are willing to receive all communications, including “legal” or potentially sensitive communications such as information about a job or grant application. You agree to check for notices posted on the Site.
  • Notice to Us (Our Legal Notices Address): We receive many emails and not all employees are trained to deal with every kind of communication. Accordingly, you agree to send us notice by mailing it to the following (‘Our Legal Notice Address’):

 

Vitiligo Research Foundation

1, Penn Plaza, P.O. Box 6205

New York, NY 10119 USA

Attn: Legal

15. Termination or Cancellation; No Continuing Rights.

You have no continuing right to use the Site and we may deny or suspend access, or terminate or cancel this agreement with or without cause and at any time and without prior notice. This is so even if you elect to store documents on this site such as your resume for use in a job application or a draft of a grant application, so make your own copies of anything to which you want to ensure access. We may give notice of termination or cancellation in the same way that we may provide other notices.

Termination or cancellation will not eliminate the surviving provisions of these Terms (see ‘Entire Agreement; Miscellaneous’) and you will still be liable for obligations incurred before the agreement or access ended.

16. Entire Agreement; Miscellaneous.

These Terms, including the Privacy Policy (including any of the supplemental privacy policies), Amendments and any: (a) notices, terms and items incorporated into any of them; (b) additional terms and conditions contained on the Site for particular activities or Content; and (c) our disclosures and your consents provided on or in connection with the Site or any Content, service or other activity; constitute the entire agreement between you and the VRF regarding the Complete Site or the subject matter of the foregoing (collectively, ‘Entire Agreement’). If any provision of the Entire Agreement is found by a court of competent jurisdiction to be invalid, its remaining provisions will remain in full force and effect, provided that the allocation of risks described herein is given effect to the fullest extent possible. The foregoing does not impair the enforceability of additional agreements you enter into such as an agreement for a grant.

Our failure to act with respect to a breach by you does not waive our right to act with respect to subsequent or similar breaches. Time is of the essence of the Entire Agreement and there are no third party beneficiaries of it. The terms of this Section 16, Sections 3 and 4, 6 through 10, and 13 through 16, and our rights under the Privacy Policy will survive termination or cancellation of this Agreement. You may print or make an electronic copy of the Entire Agreement for your official records; to the extent required by law, we hereby instruct you to do so. You may not assign these Terms or any of your rights or obligations under these Terms without our prior written consent.

17. Electronic Transactions.

We and each of the Third Parties may deal with you electronically now and in the future in their respective discretion during the entire course of activities pursued with you (e.g., applying for, obtaining, implementing, terminating and enforcing a grant or anything else), including but not limited to having you electronically sign documents and receive electronic notices. We and each of the Third Parties also reserves the right to deal non-electronically and to require you to do so.

18. Additional or Required Notices.

Various laws require or allow us to give users certain notices and each of them is incorporated into these Terms.

• Notice: No Harvesting or Dictionary Attacks Allowed (this provides information about conduct that is unlawful under the U.S. CAN SPAM Act of 2003).

• Notice Re Trademarks (this provides notice regarding who owns the trademarks used on our Site and cautions against infringement).

• Notice Re Copyright Ownership (this provides notice regarding who owns the copyrights in the Site and its contents and cautions against infringement).

• Notice of Copyright Agent (this provides contact and other information regarding the Site’s copyright agent who may be notified of claimed infringement).

• Notice of Availability of Filtering Software (this provides a notice under the U.S. Communications Decency Act).

• Notice: No Harvesting or Dictionary Attacks Allowed. The VRF will not give, sell, or otherwise transfer addresses maintained by it to any other party for the purposes of initiating, or enabling others to initiate, electronic mail messages except as authorized by law or appropriate VRF personnel or policies. Except for parties authorized to have such addresses, persons may violate federal law if they: (1) initiate the transmission to our computers or devices of a commercial electronic mail message (as defined in the U.S. ‘CAN-SPAM Act of 2003’) that does not meet the message transmission requirements of that act; or (2) assist in the origination of such messages through the provision or selection of addresses to which the messages will be transmitted.

• Notice Regarding Trademarks. The trademarks used in the Site are owned by (1) the VRF or (2) their respective trademark owners, and are either trademarks or registered trademarks of the VRF. The names of actual companies and products mentioned in the Site may be the trademarks of their respective owners. You may not use any of the above or other trademarks displayed on this Site or in any Content. All rights are reserved.

• Notice Regarding Copyright ownership: Copyright 2010-2020 the Vitiligo Research Foundation and/or its affiliates and suppliers. All rights reserved. All Services provided on the Site and any services or Content provided on any related site owned, operated, licensed or controlled by the VRF or any of its units or affiliated entities (collectively, ‘Group’), are subject to intellectual property rights, contractual and other protections. The intellectual property rights are owned by the Foundation or others in the Group or their licensors (which may include you). Except for Available Content or Content that you own, no Content may be copied, distributed, republished, uploaded, posted or transmitted in any way except pursuant to the express provisions of the Terms or with the prior non-electronic consent of the VRF or its designee. Modification or use of the Available Content for any other purpose may violate intellectual property rights. No title to copies or to intellectual property rights are transferred to users—all title and rights remain with the Foundation or others in the Group.

• Notice Regarding Copyright Agent. The VRF respects the intellectual property rights of others and requests that Site users do the same. Anyone who believes that their work has been infringed under copyright law may provide a notice to the designated Copyright Agent for the Site containing the following:

– An electronic or physical signature of a person authorized to act on behalf of the owner of the copyright interest;

– Identification of the copyrighted work claimed to have been infringed;

– Identification of the material that is claimed to be infringing and information reasonably sufficient to permit the Foundation to locate the material;

– The address, telephone number, and, if available, an e-mail address at which the complaining party may be contacted;

– A representation that the complaining party has a good faith belief that use of the material in the manner complained of is not authorized by the copyright owner, its agent, or the law;

– A representation that the information in the notice is accurate, and under penalty of perjury, that the complaining party is authorized to act on behalf of the owner of an exclusive right that is allegedly infringed.

Copyright infringement claims and notices should be sent in the following manner to:

Vitiligo Research Foundation

1 Penn Plaza, P.O. Box 6205

New York, NY 10119

United States Of America

Attn: Legal

• Notice of Availability of Filtering Software. We do not believe that the Site contains materials that would typically be the subject of filtering software and minors are not authorized to visit our Site. Nevertheless, all users are hereby informed that parental control protections (such as computer hardware, software, or filtering services) are commercially available that may assist in limiting access to material that is harmful to minors.

Last updated: January 10, 2020

worldvitiligoday.ca Privacy and Information Security Policy (‘Privacy Policy’ or ‘Policy’)

This Policy is designed to help you understand generally how 25June.org and other web properties (the ‘Site’) of the Foundation collect personally identifying information about you and how the Foundation uses and discloses that personal information. 25June.org is a Web site of the Vitiligo Research Foundation (the ‘Foundation,’ ‘we,’ ‘us’ etc.), a 501(c)3 non-profit organization existing under the laws of the State of Delaware, U.S.A. You may contact us at our Address For Legal Notices below. This Policy applies to information that personally identifies you (other than publicly available information) (‘personal information’) collected on 25June.org or any additional Foundation Web properties or third-party sites managed by the Vitiligo Research Foundation or, where indicated, other information you provide to us.

USE OF OUR SITE OR PROVISION OF ANY PERSONAL INFORMATION CONSTITUTES AGREEMENT TO THIS POLICY. DO NOT USE THE SITE OR PROVIDE INFORMATION (OR ALLOW OTHERS TO DO SO ON YOUR BEHALF) IF YOU (AND YOUR PRINCIPAL IF YOU ARE ACTING AS AGENT) DO NOT AGREE WITH ALL OF THE TERMS OF USE INCLUDING THIS POLICY AND ANY APPLICABLE SUPPLEMENTAL PRIVACY POLICY.

Table of Contents

1. How Does This Policy Relate to Use of the Site?

2. Information We Collect That You Do Not Provide

3. Information We Collect That You Do Provide

4. Information You Provide About Others

5. What We Generally Do with Personal Information Collected

6. Your Ability to Update Personal Information

7. Information Security

8. Your Particular Consents

9. Children

10. Identity Theft

11. Amendments

12. Information About Enforcement of Our Policy

 

1. How Does This Policy Relate to Use of the Site?

This Policy is part of and incorporated into the 25June.org Terms of Use (‘Terms of Use’), which is the contract between you and the organization governing use of the Site. Parts of the Terms of Use affect this Policy, so, unless you have already done so, please review them prior to using the Site. Terms used but not defined in this Policy have the definitions in the Terms of Use.

This Policy is supplemented by additional policies relevant to particular activities, and each of the supplemental policies is incorporated into this Policy. Here are examples of areas in which you will encounter supplemental privacy policies but this list is not complete: if a supplemental policy is included on the Site with respect to a particular activity, or if one is included on a Third Party site relating to the mission of the Vitiligo Research Foundation, those supplemental policies will also apply and are also incorporated.

2. Information We Collect That You Do Not Provide

Sometimes we collect personal information without you having to enter any information on the Site. For example, we may receive personal information from public sources or from third parties (which we may combine with other information from other sources).

In addition, we collect some information automatically from visitors to the Site, for example through the use of ‘cookies’, ‘web beacons’, and other tracking mechanisms. We collect at least the following: your domain name and host for Internet access; the Internet address of the site from which you came; the date and time of your access; your computer’s IP address and information about its operating system, browser and host; the date and time you access the Site and the pages you visit. If you do not want to receive cookies, you may set your browser to reject them. However, if you turn cookies off, you may not have access to some of the Site’s services and features. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issues cookies when you access the Site. We also may employ Web beacons from third parties to help us compile aggregated statistics regarding the operations of our site. We prohibit Web beacons on our site from being used by third parties to collect or access your personal information.

3. Information We Collect That You Do Provide

It is always your choice, or the choice of anyone acting for you, whether to provide personal information. However, some must be provided to participate in certain programs or activities (such as to mark your organization on the World Vitiligo Map section of our website), so the decision not to provide information might limit or eliminate certain functions of the Site or the ability to participate. Other information is up to your good judgment, e.g., do not provide personal information about yourself that could be misused by others and do not provide personal information about others without their permission. The kinds of personal information we tend to request about you or others include but are not limited to your name, email address, occupation, organization name, city, state / province, region, age, locations for internet access and devices used. Additional information about what we collect is available in any supplemental privacy policies for particular activities.

4. Information You Provide About Others

Do not supply personal information about others unless you are authorized or required to do so by applicable law or contract and you consent to the Terms of Use (including this Policy and supplemental policies) on behalf of yourself and the ‘data subject’ (the person about whom you supply personal information). Before supplying personal information about others (except as otherwise allowed by law or contract), you must make available for the data subject’s review, and obtain their written consent to, said Terms of Use and policies. By submitting any personal information about others, you represent and warrant that you are authorized to do so and that you did all of the foregoing before submitting the information. If applicable law allows you to supply the information without doing the foregoing, you represent and warrant that you have abided by that law and that it allows us to receive and Disclose the information under this Policy without any further action on our part. You agree to indemnify, defend and hold us harmless against any failure by you to comply with this paragraph.

The Vitiligo Research Foundation works with Third Parties on certain programs, and often those Third Parties own and/or are responsible for that program’s Web site. In those cases, if you provide personal information, you will be giving it to a third party and their privacy policy will apply. You agree that if they provide it to us then we may apply our Policy to what we receive.

5. What We Generally Do with Personal Information Collected

In general, we use personal information we collect to pursue our mission and operations and to engage in the activity (and related activities) for which we collect it. Specifically, we may use your personal information to:

  • to fulfill our obligations to you and to respond to any questions or requests;
  • to contact you about material changes in our site terms or policies;
  • to comply with the law or in good faith belief that such action is necessary to conform with the requirements of law or to comply with legal process served on us;
  • to provide to third parties as a result of any reorganization process;
  • if you sign up for a newsletter, we may put you on our mailing list or even the list of a Third Party who we think has a similar mission
  • if you apply for a job, we’ll use the information to find out about you and share it with service providers and others we view as relevant to the employment process.

 

Further information is available in the supplemental policies for some activities, but you should assume that we will use all information for all lawful purposes. Subject to applicable law, we reserve the right to make all lawful, worldwide uses of personal information, including without limitation, to: collect, use, access (or bar access), process, fulfill, disclose, display, share, respond to legal process or otherwise exercise our rights under applicable law, transfer, store, verify, enforce, delete, and otherwise deal with personal information, and information other than personal information (collectively “Disclose’).

6. Your Ability to Update Personal Information

To the extent our systems require your personal information, in general, they provide the ability for you to update your information. If you have any questions about what personal information about you the Vitiligo Research Foundation retains, please contact us at info@vrfoundation.org. The organization endeavors to keep your personal information accurate and up to date. If your personal information has changed, you may submit your new information there as well. Some activities allow some updating, e.g., you may update your or your organization’s “World Vitiligo Map’ profile by using the functionality in that section of the Site.

We keep personal information for as long as we think is necessary or advisable and we reserve the right to retain it to the full extent not prohibited by law. We may discard personal information in our discretion, so you should retain your own records, and not rely upon our storage of any personal information or other data.

7. Information Security

We use reasonable technical and organizational measures to protect the personal information received from our users from unauthorized use or disclosure.

8. Your Particular Consents

In addition to consenting to the Terms of Use, including this Policy (and any relevant supplemental policies), the Vitiligo Research Foundation is interested in letting you know about, and receiving your particular consent to, a few activities relating to personal information that will help us to deal with personal information that is Disclosed in furtherance of our mission, operations and programs. These are described immediately below.

  • Consent to International Transfer and Disclosure of Personal Information. We are involved in programs and activities in a variety of countries. You agree that the Foundation and those with whom we share personal information (‘Recipients’) may Disclose and transfer your personal information worldwide (including outside the European Economic Area, if you are based in the European Economic Area) for any purpose relating to our or their mission, operations, programs, or otherwise that is not allowed or prohibited by this Policy.
  • Consent to Electronic Notice If There is a Security Breach: If we or a Recipient is required to provide notice of unauthorized access or other invasion of certain security systems, you agree that we (or they) may do so when required (or voluntarily) by posting notice on our Site or sending notice to any email address we have for you, in our (or their) good faith discretion. You agree that notice to you will count as notice to others for whom you are acting, and agree to pass the notice on to them.

 

9. Children

We do not want to collect information from children. Do not provide any personal information unless you are at least 13 years of age, and please caution your children not to provide any. If a child under 13 has provided personal information, a parent or guardian may so inform us by writing us at Our Address for Legal Notices (see below) and we will use commercially reasonable efforts to delete it from our database, subject to applicable law and this Policy.

10. Identity Theft

If anyone believes they’re a victim of identity theft entitled by law to request information from us, write us at Our Address For Legal Notices and we’ll explain what information we require in order to respond. After receiving that information, we’ll supply (without charge) information we then have that we are legally required to provide (subject to applicable law and reserving all rights and defenses).

11. Amendments

We will be changing what we do and how and why we Disclose data periodically—this Policy describes what we currently envision, but that will change as we change. You agree that this Policy amends and replaces any previous privacy polic(ies). We may further amend all or part of this Policy in the same way that we make amendments to our Terms of Use and such amended versions will be posted on this page.

This Policy becomes effective on February 1, 2017, and applies to all information previously obtained by Vitiligo Research Foundation.

12. Information About Enforcement of Our Policy

This Policy is part of and supplemented by our Terms of Use, which together with any supplemental privacy policy form a contract. If there is a conflict between the Terms of Use and this Policy, the latest version of this Policy will control. We and you are bound by the Terms of Use, including this Policy. If you think we are in default, you may contact us by writing to Our Address For Legal Notices. There are no third party beneficiaries of this Policy.

Our Address for Legal Notices:

Vitiligo Research Foundation

1, Penn Plaza, P.O. Box 6205

New York, NY 10119

United States of America

Attn: Legal

 

Last updated: January 10, 2020